Hi Heather, Sonya Lee here aka “ChickieLou”. I’ve been so hesitant to weigh in because while I do not have LC, have never even had COVID (yet), I’ve been experiencing repercussions from the vaccine and if you knew me, you’d know the absolute near-shame I feel in texting those words. I am absolutely pro science and pro vax. But here I am with an ever worsening heart arrhythmia obtained (lucky me) after the last vaccine, on the very night of the vaccine October 12 until last night. The cardiologist put me through every test, deemed it benign (my Apple Watch was saying A-Fib) and rather than reassuring me and contributing less stress, it grew steadily worse over time until I was looking at anti-arrhythmia drugs. (Do not want!)
Anyway, I have been wanting to tell you, while you are going through your labs and work up for this, be sure to ask about getting your Vitamin D checked. At my last physical in August, we almost dismissed this test because I walk 3 miles every day in the high desert of central Oregon (listening to podcasts!) My skin is not particularly tanned (which resists D uptake). So doctor and I assumed it would be normal but “let’s do it anyway”. Well! It came back very very low. So low, it’s dangerous! She put me on a pharmaceutical grade Vitamin D (50000 IU weekly for 8 weeks). I’m 4 weeks into the therapy. And while I can’t say my arrhythmia is gone, it has improved. My chronic fatigue and brain fog, as you can imagine with this deficiency, is profoundly better. Anyway, I thought today was the day to share that, in case your doctors feel testing this wouldn’t hurt. I’m sort of evangelizing about it now to all my friends and family (who were absolutely shocked that this could happen to me who practically lives outdoors.) I’m hoping to be able to get my booster in December.
Love you Heather and wish you nothing but good health.
Wow! First, that is GREAT NEWS that something is helping (I’ll get Vitamin D added to my labs, definitely!)
Second, the Neuro I spoke with and Dr Wes Ely on Ep59 of TLC Sessions podcast (tlcsessions.net) or maybe it was Ep 61 with Dr Leo Galland...? Anyway, the Point is that they’re VERY clear that Vaccine-derived Long-COVID is ABSOLUTELY a thing.
You’re just more special than typical LC.
😜 but also 🥺
Anyone who gives you guff, send-’em my way.
That “Visible” app might be super useful for you, too.
Keep us posted on how you’re doing with the Vitamin D!!! There’s definitely no quick fix, so any improvement is a huge win! 👏
As a follow-up, I feel I need to add that I am researching “vaccine induced long COVID” and it is stated in places that it’s rare. But I don’t believe this. Underreported, maybe. But I can identify 10 people in my FB Cardiac Arrhythmia group who are like me. But I feel, also like me, they never want to cast aspersions on that life-saving vaccine. Or, it’s the typical “woman, it’s in your head” stuff from the medical community. I contacted Harvard’s LISTEN Study coordinator to see what he/she can offer me. Jeez Heather. Wow! Thank you again. Hoping today is a good day for you.
That’s really interesting about vaccine derived LC! Wow! And yep, Visible app is downloaded. And even after I wrote that yesterday, cardiac symptoms were as bad as ever last night but the crushing fatigue is so much better. My doctor also has me on a hormone and cortisol adjustment protocol. HRT and ashwagandha. We’ll see. 🤞🏽
Yes, please! Let us know if anything seems to help!
I also think your assessment of Vaccine Induced Long-COVID not being reported (for all the reasons above) is very likely the situation. There are so many times we hit “what’s the point” walls… it’s just insane that one of those walls has to be our health!
It's like they're scratching away at what is and is not where it should be...but no one is House-ing it all together. The first makes me happy, if someone is doing the second, I really would love to know who/where!
Hi Heather, Sonya Lee here aka “ChickieLou”. I’ve been so hesitant to weigh in because while I do not have LC, have never even had COVID (yet), I’ve been experiencing repercussions from the vaccine and if you knew me, you’d know the absolute near-shame I feel in texting those words. I am absolutely pro science and pro vax. But here I am with an ever worsening heart arrhythmia obtained (lucky me) after the last vaccine, on the very night of the vaccine October 12 until last night. The cardiologist put me through every test, deemed it benign (my Apple Watch was saying A-Fib) and rather than reassuring me and contributing less stress, it grew steadily worse over time until I was looking at anti-arrhythmia drugs. (Do not want!)
Anyway, I have been wanting to tell you, while you are going through your labs and work up for this, be sure to ask about getting your Vitamin D checked. At my last physical in August, we almost dismissed this test because I walk 3 miles every day in the high desert of central Oregon (listening to podcasts!) My skin is not particularly tanned (which resists D uptake). So doctor and I assumed it would be normal but “let’s do it anyway”. Well! It came back very very low. So low, it’s dangerous! She put me on a pharmaceutical grade Vitamin D (50000 IU weekly for 8 weeks). I’m 4 weeks into the therapy. And while I can’t say my arrhythmia is gone, it has improved. My chronic fatigue and brain fog, as you can imagine with this deficiency, is profoundly better. Anyway, I thought today was the day to share that, in case your doctors feel testing this wouldn’t hurt. I’m sort of evangelizing about it now to all my friends and family (who were absolutely shocked that this could happen to me who practically lives outdoors.) I’m hoping to be able to get my booster in December.
Love you Heather and wish you nothing but good health.
Wow! First, that is GREAT NEWS that something is helping (I’ll get Vitamin D added to my labs, definitely!)
Second, the Neuro I spoke with and Dr Wes Ely on Ep59 of TLC Sessions podcast (tlcsessions.net) or maybe it was Ep 61 with Dr Leo Galland...? Anyway, the Point is that they’re VERY clear that Vaccine-derived Long-COVID is ABSOLUTELY a thing.
You’re just more special than typical LC.
😜 but also 🥺
Anyone who gives you guff, send-’em my way.
That “Visible” app might be super useful for you, too.
Keep us posted on how you’re doing with the Vitamin D!!! There’s definitely no quick fix, so any improvement is a huge win! 👏
As a follow-up, I feel I need to add that I am researching “vaccine induced long COVID” and it is stated in places that it’s rare. But I don’t believe this. Underreported, maybe. But I can identify 10 people in my FB Cardiac Arrhythmia group who are like me. But I feel, also like me, they never want to cast aspersions on that life-saving vaccine. Or, it’s the typical “woman, it’s in your head” stuff from the medical community. I contacted Harvard’s LISTEN Study coordinator to see what he/she can offer me. Jeez Heather. Wow! Thank you again. Hoping today is a good day for you.
That’s really interesting about vaccine derived LC! Wow! And yep, Visible app is downloaded. And even after I wrote that yesterday, cardiac symptoms were as bad as ever last night but the crushing fatigue is so much better. My doctor also has me on a hormone and cortisol adjustment protocol. HRT and ashwagandha. We’ll see. 🤞🏽
Yes, please! Let us know if anything seems to help!
I also think your assessment of Vaccine Induced Long-COVID not being reported (for all the reasons above) is very likely the situation. There are so many times we hit “what’s the point” walls… it’s just insane that one of those walls has to be our health!
I’m sure you’ve seen this. I was just coming over to substack to post it and saw your comment. Thank you for that!
LOW CORTISOL.
https://apple.news/AwvNpSSx9TXi93ia8f204Mg
It's like they're scratching away at what is and is not where it should be...but no one is House-ing it all together. The first makes me happy, if someone is doing the second, I really would love to know who/where!